HR 6203
110th CONGRESS
2d Session
H. R. 6203
To amend the Public Health Service Act to ensure sufficient resources
and increase efforts for research at the National Institutes of Health relating
to Alzheimer's disease, to authorize an education and outreach program to
promote public awareness and risk reduction with respect to Alzheimer's disease
(with particular emphasis on education and outreach in Hispanic populations),
and for other purposes.
IN THE HOUSE OF REPRESENTATIVES
June 5, 2008
Ms. LINDA T. SANCHEZ of California (for herself, Ms. BERKLEY, Mr. BERMAN,
Mr. BISHOP of Georgia, Mr. BISHOP of New York, Ms. BORDALLO, Mr. BRADY of
Pennsylvania, Mr. CAPUANO, Mr. CLAY, Mr. COHEN, Mr. COURTNEY, Mrs. DAVIS of
California, Mr. GRIJALVA, Mr. HARE, Mr. HIGGINS, Mr. HINOJOSA, Mr. HOLT, Mr.
INSLEE, Mr. ISRAEL, Mr. LARSON of Connecticut, Ms. LEE, Mr. MARKEY, Mr. MCGOVERN,
Mr. MCNULTY, Mrs. NAPOLITANO, Mr. ORTIZ, Mr. REYES, Mr. RODRIGUEZ, Ms. ROS-LEHTINEN,
Mr. RYAN of Ohio, Ms. LORETTA SANCHEZ of California, Mr. SIRES, Ms. SOLIS,
Ms. WATERS, Mr. WATT, Mr. WEXLER, and Mr. WU) introduced the following bill;
which was referred to the Committee on Energy and Commerce
A BILL
To amend the Public Health Service Act to ensure sufficient resources
and increase efforts for research at the National Institutes of Health relating
to Alzheimer's disease, to authorize an education and outreach program to
promote public awareness and risk reduction with respect to Alzheimer's disease
(with particular emphasis on education and outreach in Hispanic populations),
and for other purposes.
Be it enacted by the Senate and House of Representatives of the United
States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the `Cure and Understanding through Research for
Alzheimer's Act of 2008' or the `La Cura Act of 2008'.
SEC. 2. FINDINGS.
The Congress finds as follows:
(1) The incidence and prevalence of Alzheimer's disease increase with age.
Alzheimer's disease is currently the seventh leading cause of death of all
ages in the United States (and the fifth leading cause of death for people
over 65 years of age), with 5.2 million individuals in the United States
living with Alzheimer's disease. Currently, one of each eight individuals
in the United States over age 65 has Alzheimer's disease. Every 71 seconds,
an individual in the United States develops Alzheimer's disease, and by
2050, every 33 seconds an individual in the United States will develop this
disease. By 2050, the number of individuals in the United States age 65
and over with Alzheimer's disease will range from 11 million to 16 million
individuals. It is projected that by 2050, more than 60 percent of individuals
in the United States with Alzheimer's disease will be age 85 or older.
(2) The prevalence of Alzheimer's disease and dementia seems to be higher
among individuals with fewer years of education. Individuals with fewer
than 12 years of education have a 15 percent greater risk of developing
dementia than individuals with 12 to 15 years of education and a 35 percent
greater risk of developing dementia than individuals with more than 15 years
of education.
(3) Hispanics are the fastest growing population in the Nation and by 2050,
will have a life expectancy of 87 years, longer than any other ethnic or
racial group. The Hispanic community in the United States is projected to
experience a six-fold increase in Alzheimer's disease (from fewer than 200,000
to as many as 1.3 million) by 2050.
(4) Hispanics may be at a greater risk of developing dementia than other
ethnic or racial groups: Hispanics' 64-percent higher incidence of diabetes
than non-Hispanic white Americans is of particular concern in light of new
findings that diabetes is the one vascular risk factor that, in the absence
of stroke, is related to an increased risk of Alzheimer's disease.
(5) Research on disparities in Alzheimer's risk factors between Hispanic
and other ethnic and racial groups is only beginning to sort out complex
differences: for example, even in the absence of the APOE-e4 allele, the
one known genetic risk factor for late onset Alzheimer's, Caribbean Hispanics
have a cumulative risk for Alzheimer's twice that of non-Hispanic whites.
(6) The shortage of bilingual health professionals, combined with the large
population of monolingual Spanish-speaking seniors, make adequate testing
and diagnosis of Alzheimer's among elderly Hispanics difficult and may lead
to cultural biases in cognitive testing. Moreover, inadequate translation
of diagnostic tools can lead to improper diagnoses, and there may be poor
understanding of recommended treatment and self-care even among those who
are properly diagnosed.
(7) Hispanics are far more likely to be uninsured than any other ethnic
group: the Bureau of the Census reports that 34.1 percent of the Hispanic
population in the United States is uninsured, compared to 10.8 percent for
non-Hispanic whites and 15.3 percent for all United States residents.
(8) Lack of access to health care and a strong cultural commitment to caring
for one's elders within the family are among the factors that make Hispanics
with dementia less likely than non-Hispanics to see a physician and use
related services provided by formal health professionals: delays in diagnosis
and lack of early and consistent treatment can lead to higher levels of
impairment and increased stress on family caregivers.
(9) Hispanic elders are second most likely, after Asian Americans, to live
with their families rather than in long term care facilities. More research
is needed to better understand the effects of differing care settings on
family caregivers and Alzheimer's patients.
(10) Alzheimer's disease costs the United States $148 billion each year
in direct and indirect costs to business, the Medicare program, and the
Medicaid program (not including private health insurance costs).
SEC. 3. NIH RESEARCH AND EDUCATION ON ALZHEIMER'S DISEASE.
Subpart 5 of part C of title IV of the Public Health Service Act (42 U.S.C.
285e et seq.) is amended by adding at the end the following new section:
`SEC. 445J. NIH RESEARCH AND EDUCATION ON ALZHEIMER'S DISEASE.
`(a) Research Activities- In conducting research relating to Alzheimer's disease,
the Director of the National Institutes of Health shall ensure sufficient
resources for activities relating to Alzheimer's disease and Hispanic communities,
including by--
`(1) increasing efforts in epidemiological work in Hispanic subgroups;
`(2) allocating resources to the National Institute on Aging Alzheimer's
disease research centers and other academic centers involved in Alzheimer's
disease research to increase participation of Hispanics and other under
represented ethnic groups in research and clinical trials in sufficient
numbers to draw valid conclusions; and
`(3) conducting social, behavioral, and health services research--
`(A) to understand more fully the underlying reasons that Hispanic individuals
delay diagnosis and underutilize services;
`(B) to identify culturally and linguistically appropriate approaches
for addressing such delays and underutilization; and
`(C) to identify approaches for providing, and improving the quality of,
culturally competent care.
`(b) Education Activities- The Director of the National Institutes of Health
shall expand and intensify efforts of the National Institutes of Health--
`(1) to educate communities about the importance of research relating to
Alzheimer's disease; and
`(2) to respond effectively to cultural concerns about participation in
such research, especially with respect to sensitive matters like the collection
of brain tissue and genetic information.'.
SEC. 4. INCREASED FUNDING FOR ALZHEIMER'S DISEASE DEMONSTRATION GRANTS.
Section 398B(e) of the Public Health Service Act (42 U.S.C. 280c-5(e)) is
amended--
(1) by striking `and such' and inserting `such'; and
(2) by inserting before the period at the end `, $25,000,000 for fiscal
year 2009, and such sums as may be necessary for each of the fiscal years
2010 through 2013'.
SEC. 5. CDC OUTREACH AND EDUCATION.
Part B of title III of the Public Health Service Act (42 U.S.C. 243 et seq.)
is amended by inserting after section 317S the following:
`SEC. 317T. EDUCATION AND OUTREACH ON ALZHEIMER'S DISEASE.
`(a) Purposes- The purposes of this section are the following:
`(1) To reduce the risk of Alzheimer's disease through reduction of vascular
risk factors.
`(2) To encourage early recognition and diagnosis of dementia.
`(3) To train public health personnel to recognize, assess, diagnose, and
treat Alzheimer's disease in ways that are culturally appropriate and supportive
of families.
`(b) Education and Outreach- To achieve the purposes of this section, the
Secretary, acting through the Centers for Disease Control and Prevention,
shall conduct an aggressive, evidence-based education and outreach program
to promote public awareness and risk reduction with respect to Alzheimer's
disease. In conducting the outreach program, the Secretary shall consult with
State Health Departments and may consult with other appropriate entities,
including the Alzheimer's Association.
`(c) Emphasis- In carrying out this section, the Secretary shall give particular
emphasis to education and outreach in Hispanic populations.'.
END
