S 2141
110th CONGRESS
1st Session
S. 2141
To amend the Public Health Service Act to reauthorize and extend
the Fetal Alcohol Syndrome prevention and services program, and for
other purposes.
IN THE SENATE OF THE UNITED STATES
October 4, 2007
Mr. JOHNSON (for himself, Ms. MURKOWSKI, Mr. BROWN, Mr. DURBIN, Ms.
LANDRIEU, and Mrs. MURRAY) introduced the following bill; which was
read twice and referred to the Committee on Health, Education, Labor,
and Pensions
A BILL
To amend the Public Health Service Act to reauthorize and extend
the Fetal Alcohol Syndrome prevention and services program, and for
other purposes.
Be it enacted by the Senate and House of Representatives of the
United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the `Advancing FASD Research, Prevention, and
Services Act'.
SEC. 2. FINDINGS.
Congress makes the following findings:
(1) Fetal Alcohol Spectrum Disorders (FASD) are the spectrum of serious,
life-long disorders caused by prenatal exposure to alcohol, which
include Fetal Alcohol Syndrome, Alcohol-Related Neurodevelopmental
Disorder, and Alcohol-Related Birth Defects.
(2) In the decades that have passed since Fetal Alcohol Syndrome was
first recognized in the United States, this fully preventable condition
has continued to affect American children and families.
(3) Prenatal alcohol exposure can cause brain damage that produces
cognitive and behavioral impairments. Prenatal alcohol exposure can
cause cognitive disability or low IQ and difficulties with learning,
memory, attention, and problem solving. It can also create problems
with executive functioning that impairs mental health and social interactions.
Prenatal alcohol exposure does not always result in below average
IQ or visible birth defects, which makes Fetal Alcohol Spectrum Disorders
difficult to identify, leading to improper treatment or denial of
support services.
(4) Prenatal alcohol exposure also can cause growth retardation, birth
defects involving the heart, kidney, vision and hearing, and a characteristic
pattern of facial abnormalities. Prenatal alcohol exposure can also
result in secondary behavioral characteristics that may include anxiety,
attention disorders, aggression, truancy or trouble with the law,
depression, and suicide.
(5) According to the Substance Abuse and Mental Health Services Administration,
more than 1 in 5 women report drinking alcohol in the first trimester
of pregnancy, 1 in 14 in the second trimester, and 1 in 20 in the
third trimester, even though there is no known safe level of alcohol
consumption during pregnancy.
(6) The incidence rate for all Fetal Alcohol Spectrum Disorders is
estimated in a publication of the National Institute on Alcohol Abuse
and Alcoholism to be about 10 out of 1,000 births (1 percent of births)
or 40,000 newborns each year. It is estimated that as many as 2 per
1,000, or 20 percent of alcohol exposed newborns, have Fetal Alcohol
Syndrome, the most serious of the Fetal Alcohol Spectrum Disorders.
(7) As measured by the Fetal Alcohol Syndrome Surveillance Network,
a partnership between the Centers for Disease Control and Prevention
and 5 different States, prevalence of Fetal Alcohol Spectrum Disorders
can be even higher in certain populations, such as Native Americans,
adopted children from countries where alcohol consumption is more
prevalent, and in certain areas, such as those characterized by low
socioeconomic status.
(8) Fetal Alcohol Spectrum Disorders pose extraordinary financial
costs to the Nation, including the cost of specialized health care,
education, foster care, incarceration, job training, and general support
services for individuals affected by Fetal Alcohol Spectrum Disorders.
(9) Lifetime health costs for an individual with Fetal Alcohol Syndrome
is at least $2,000,000. The cost of Fetal Alcohol Syndrome in the
United States is estimated to be at least $6,000,000,000 in 2007.
Total economic costs would be even higher for all Fetal Alcohol Spectrum
Disorders.
(10) There is a great need for research, surveillance, prevention,
treatment, and support services for individuals with Fetal Alcohol
Spectrum Disorders and their families.
(11) The National Institutes of Health, in coordination with other
Federal agencies, the Interagency Coordinating Committee on Fetal
Alcohol Syndrome, and the National Task Force on Fetal Alcohol Syndrome
and Fetal Alcohol Effect, has an opportunity to advance research on
Fetal Alcohol Spectrum Disorders in many areas, including the following:
(A) The identification of the mechanisms that produce the cognitive
and behavioral problems associated with fetal alcohol exposure.
(B) The identification of a neurocognitive and neurobehavioral phenotype
for Fetal Alcohol Syndrome and Alcohol-Related Neurodevelopmental
Disorder.
(C) The identification of specific structural and functional deficits
within the brain responsible for the neurocognitive and neurobehavioral
phenotype.
(D) The identification of biological markers that can be used to
indicate fetal alcohol exposure.
(E) The identification of fetal and maternal risk factors that increase
susceptibility to Fetal Alcohol Spectrum Disorders.
(F) The investigation of behavioral and pharmacotherapies for alcohol-dependent
women to determine new approaches for sustaining recovery.
(G) The development of scientific-based pharmacologic and nutrient
augmentation-based pre- and post-natal interventions to antagonize
or mitigate the effects of prenatal alcohol exposure.
(H) The development of neurocognitive interventions to address deficits
in neurocognitive function for individuals with Fetal Alcohol Spectrum
Disorders.
(I) The development of standards for measuring, reporting, and analyzing
alcohol consumption patterns in pregnant women.
(J) The development of enhanced technological approaches for the
diagnosis of Fetal Alcohol Spectrum Disorders including investigation
of prenatal ultrasound, non-invasive imaging, three dimensional
facial feature imaging and their application in telemedicine to
aid in remote diagnosis.
(K) The evaluation of the role of alcohol in Sudden Infant Death
Syndrome (SIDS), unexplained stillbirth, and premature birth.
(L) The collection and banking of biomaterials such as hair, meconium,
serum, cells, and DNA for future analyses to aid in the identification
of genetic and other biological and environmental risk factors contributing
in the development of Fetal Alcohol Spectrum Disorders.
SEC. 3. PROGRAMS FOR FETAL ALCOHOL SPECTRUM DISORDERS.
Section 399H of the Public Health Service Act (42 U.S.C. 280f) is amended--
(1) by striking the section heading and inserting the following: `sec.
399h. programs for fetal alcohol spectrum disorders.';
(2) by redesignating subsections (a) through (d) as subsections (h)
through (k), respectively;
(3) by inserting after the section heading, the following:
`(a) Research on FAS and Related Disorders-
`(1) IN GENERAL- The Secretary, acting through the Director of the
National Institutes of Health and in coordination with the Interagency
Coordinating Committee on Fetal Alcohol Syndrome, shall--
`(A) establish a research agenda for Fetal Alcohol Spectrum Disorders;
and
`(B) award grants, contracts, or cooperative agreements to public
or private nonprofit entities to pay all or part of carrying out
research under such agenda.
`(2) TYPES OF RESEARCH- In carrying out paragraph (1), the Secretary,
acting through the Director of the National Institute of Alcohol Abuse
and Alcoholism, shall continue to conduct and expand national and
international research in coordination with other Federal agencies
that includes--
`(A) the most promising avenues of research in Fetal Alcohol Spectrum
Disorder diagnosis, intervention, and prevention;
`(B) factors that may mitigate the effects of fetal alcohol exposure;
and
`(C) other research that the Director determines to be appropriate.
`(3) AUTHORIZATION OF APPROPRIATIONS- There are authorized to be appropriated
to carry out this subsection, such sums as may be necessary for each
of fiscal years 2008 through 2012.
`(b) Surveillance, Public Health Research, and Prevention Activities-
`(1) IN GENERAL- The Secretary, acting through the Director of the
National Center on Birth Defects and Developmental Disabilities, shall
facilitate surveillance, public health research, and prevention of
Fetal Alcohol Spectrum Disorders as provided for in this subsection.
`(2) SURVEILLANCE, PUBLIC HEALTH RESEARCH, AND PREVENTION- In carrying
out this subsection, the Secretary shall--
`(A) integrate into clinical practice the standard case definition
for diagnosis of Fetal Alcohol Syndrome and, in collaboration with
the National Institute on Alcohol Abuse and Alcoholism, the National
Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect, researchers,
and experts in the field, explore the feasibility of developing
a standard clinical case definition for Alcohol-Related Neurodevelopmental
Disorder;
`(B) conduct applied public health prevention research to identify
evidence-based strategies for reducing alcohol-exposed pregnancies
in women at high risk for alcohol-exposed pregnancies;
`(C) disseminate and provide the necessary training and support
to implement evidence-based strategies developed under subparagraph
(A) to--
`(i) hospitals, federally qualified health centers, outpatient
programs, and other appropriate health care providers;
`(ii) incarceration, detainment facilities, and other judicial
systems for juveniles and adults;
`(iii) educational settings;
`(iv) social work and child welfare offices;
`(v) foster care providers and adoption agencies;
`(vi) State offices and others providing services to individuals
with disabilities;
`(vii) alcoholism treatment facilities; and
`(viii) other entities that the Secretary determines to be appropriate;
and
`(D) conduct activities related to risk factor surveillance including
the biannual monitoring and reporting of alcohol consumption among
pregnant women and women of child bearing age.
`(3) AUTHORIZATION OF APPROPRIATION- There are authorized to be appropriated
to carry out this subsection, such sums as may be necessary for each
of fiscal years 2008 through 2012.
`(c) Building State FASD Systems-
`(1) IN GENERAL- The Secretary, acting through the Administrator of
the Substance Abuse and Mental Health Services Administration, shall
award grants, contracts, or cooperative agreements to States for the
purpose of establishing or expanding statewide programs of surveillance,
prevention, and clinical intervention for individuals with Fetal Alcohol
Spectrum Disorders.
`(2) ELIGIBILITY- To be eligible to receive a grant, contract, or
cooperative agreement under paragraph (1) a State shall--
`(A) prepare and submit to the Secretary an application at such
time, in such manner, and containing such information as the Secretary
may reasonably require;
`(B) develop and implement a statewide strategic plan for preventing
Fetal Alcohol Spectrum Disorders and clinical intervention for individuals
with Fetal Alcohol Spectrum Disorders;
`(C) consult with public and private non-profit entities with relevant
expertise on Fetal Alcohol Spectrum Disorders within the State,
including--
`(i) parent-led groups and other organizations that support and
advocate for individuals with Fetal Alcohol Spectrum Disorders;
and
`(ii) Indian tribes and tribal organizations; and
`(D) designate an individual to serve as the coordinator of the
State's Fetal Alcohol Spectrum Disorders program.
`(3) STRATEGIC PLAN- The statewide strategic plan prepared under paragraph
(2)(B) shall include--
`(A) the identification of existing State programs and systems that
could be used to identify and assist individuals with Fetal Alcohol
Spectrum Disorders and prevent alcohol consumption during pregnancy,
such as--
`(i) programs for the developmentally disabled, the mentally ill,
and individuals with alcohol dependency;
`(ii) educational settings;
`(iii) incarceration, detention centers, and judicial systems
for juveniles and adults;
`(iv) child welfare programs and social service programs; and
`(v) other programs or systems the State determines to be appropriate;
`(B) the identification of any barriers for individuals with Fetal
Alcohol Spectrum Disorders or women at risk for alcohol consumption
during pregnancy to access the programs identified under subparagraph
(A); and
`(C) proposals to eliminate barriers to prevention and treatment
programs and coordinate the activities of such programs.
`(4) USE OF FUNDS- Amounts received under a grant, contract, or cooperative
agreement under paragraph (1) shall be used for 1 or more of the following
activities:
`(A) Establishing a statewide surveillance system.
`(B) Collecting, analyzing, and interpreting data.
`(C) Establishing a diagnostic center.
`(D) Developing, implementing, and evaluating population-based and
targeted prevention programs for Fetal Alcohol Spectrum Disorders,
including public awareness campaigns.
`(E) Referring individuals with Fetal Alcohol Spectrum Disorders
to appropriate support services.
`(F) Implementing recommendations from relevant agencies and organizations
on the identification and prevention of Fetal Alcohol Spectrum Disorders,
and clinical intervention for individuals with Fetal Alcohol Spectrum
Disorders.
`(G) Providing training to health care providers on the prevention,
identification, and treatment of Fetal Alcohol Spectrum Disorders.
`(H) Disseminating information about Fetal Alcohol Spectrum Disorders
and the availability of support services to families of individuals
with Fetal Alcohol Spectrum Disorders.
`(I) Other activities determined appropriate by the Secretary.
`(5) MULTI-STATE PROGRAMS- The Secretary shall permit the formation
of multi-State Fetal Alcohol Spectrum Disorders programs under this
subsection.
`(6) OTHER CONTRACTS AND AGREEMENTS- A State may carry out activities
under paragraph (4) through contacts or cooperative agreements with
public and private non-profit entities with a demonstrated expertise
in Fetal Alcohol Spectrum Disorders.
`(7) AUTHORIZATION OF APPROPRIATIONS- There are authorized to be appropriated
to carry out this subsection, such sums as may be necessary for fiscal
years 2008 through 2012.
`(d) Promoting Community Partnerships-
`(1) IN GENERAL- The Secretary shall award grants, contracts, or cooperative
agreements to eligible entities to enable such entities to establish,
enhance, or improve community partnerships for the purpose of collaborating
on common objectives and integrating the services available to individuals
with Fetal Alcohol Spectrum Disorders, such as surveillance, prevention,
treatment, and provision of support services.
`(2) ELIGIBLE ENTITIES- To be eligible to receive a grant, contract,
or cooperative agreement under paragraph (1), an entity shall--
`(A) be a public or private nonprofit entity, including--
`(i) a health care provider or health professional;
`(ii) a primary or secondary school;
`(iii) a social work or child welfare office;
`(iv) an incarceration, detainment facility, or judicial systems
for juveniles and adults;
`(v) a parent-led group or other organization that supports and
advocates for individuals with Fetal Alcohol Spectrum Disorders;
`(vi) an Indian tribe or tribal organization;
`(vii) any other entity the Secretary determines to be appropriate;
or
`(viii) a consortium of any of the entities described in clauses
(i) through (vii); and
`(B) prepare and submit to the Secretary an application at such
time, in such manner, and containing such information as the Secretary
may reasonably require, including assurances that the entity submitting
the application does, at the time of application, or will, within
a reasonable amount of time from the date of application, include
substantive participation of a broad range of entities that work
with or provide services for individuals with Fetal Alcohol Spectrum
Disorders.
`(3) ACTIVITIES- An eligible entity shall use amounts received under
a grant, contract, or cooperative agreement under this subsection
shall carry out 1 or more of the following activities:
`(A) Integrating Fetal Alcohol Spectrum Disorders services into
existing programs and services available in the community.
`(B) Conducting a needs assessment to identify services that are
not available in a community.
`(C) Developing and implementing community-based initiatives to
prevent, diagnose, treat, and provide support services to individuals
with Fetal Alcohol Spectrum Disorders.
`(D) Disseminating information about Fetal Alcohol Spectrum Disorders
and the availability of support services.
`(E) Developing and implementing a community-wide public awareness
and outreach campaign focusing on the dangers of drinking alcohol
while pregnant.
`(F) Providing mentoring or other support to families of individuals
with Fetal Alcohol Spectrum Disorders.
`(G) Other activities determined appropriate by the Secretary.
`(4) AUTHORIZATION OF APPROPRIATION- There are authorized to be appropriated
to carry out this subsection, such sums as may be necessary for each
of fiscal years 2008 through 2012.
`(e) Development of Best Practices-
`(1) IN GENERAL- The Secretary, in coordination with the Administrator
of the Substance Abuse and Mental Health Services Administration,
shall award grants to States, Indian tribes and tribal organizations,
and nongovernmental organizations for the establishment of pilot projects
to identify and implement best practices for--
`(A) educating children with fetal alcohol spectrum disorders, including--
`(i) activities and programs designed specifically for the identification,
treatment, and education of such children; and
`(ii) curricula development and credentialing of teachers, administrators,
and social workers who implement such programs;
`(B) educating judges, attorneys, probation officers, child advocates,
law enforcement officers, prison wardens, alternative incarceration
administrators, and incarceration officials on how to treat and
support individuals suffering from Fetal Alcohol Spectrum Disorders
within the criminal justice system, including--
`(i) programs designed specifically for the identification, treatment,
and education of those with Fetal Alcohol Spectrum Disorders;
and
`(ii) curricula development and credentialing within the justice
system for individuals who implement such programs; and
`(C) educating adoption or foster care agency officials about available
and necessary services for children with Fetal Alcohol Spectrum
Disorders, including--
`(i) programs designed specifically for the identification, treatment,
and education of those with Fetal Alcohol Spectrum Disorders;
and
`(ii) education and training for potential parents of an adopted
child with Fetal Alcohol Spectrum Disorders.
`(2) APPLICATION- To be eligible for a grant under paragraph (1),
an entity shall prepare and submit to the Secretary an application
at such time, in such manner, and containing such information as the
Secretary may reasonably require.
`(3) AUTHORIZATION OF APPROPRIATIONS- There are authorized to be appropriated
to carry out this subsection, such sums as may be necessary for each
of fiscal years 2008 through 2012.
`(f) Transitional Services-
`(1) IN GENERAL- The Secretary shall award demonstration grants, contracts,
and cooperative agreements to States, Indian tribes and tribal organizations,
and nongovernmental organizations for the purpose of establishing
integrated systems for providing transitional services for those affected
by prenatal alcohol exposure and evaluating their effectiveness.
`(2) APPLICATION- To be eligible for a grant, contract, or cooperative
agreement under paragraph (1), an entity shall prepare and submit
to the Secretary an application at such time, in such manner, and
containing such information as the Secretary may reasonably require,
including specific credentials relating to education, skills, training,
and continuing educational requirements relating to Fetal Alcohol
Spectrum Disorders.
`(3) ALLOWABLE USES- An entity shall use amounts received under a
grant, contract, or cooperative agreement under paragraph (1) to--
`(A) provide housing assistance to, or specialized housing for,
adults with Fetal Alcohol Spectrum Disorders;
`(B) provide vocational training and placement services for adults
with Fetal Alcohol Spectrum Disorders;
`(C) provide medication monitoring services for adults with Fetal
Alcohol Spectrum Disorders; and
`(D) provide training and support to organizations providing family
services or mental health programs and other organizations that
work with adults with Fetal Alcohol Spectrum Disorders.
`(4) AUTHORIZATION OF APPROPRIATIONS- There are authorized to be appropriated
to carry out this subsection, such sums as may be necessary for each
of fiscal years 2008 through 2012.
`(g) Federally Qualified Health Center Initiative-
`(1) IN GENERAL- The Secretary, acting through the Administrator of
the Health Resources and Services Administration, shall award grants
to federally qualified health centers acting in collaboration with
States, Indian tribes, tribal organizations, and nongovernmental organizations,
for the establishment of a 5-year demonstration program to implement
and evaluate a program to increase the awareness and identification
of Fetal Alcohol Spectrum Disorders in federally qualified health
centers and to refer affected individuals to appropriate support services.
`(2) APPLICATION- To be eligible to receive a grant under paragraph
(1), a federally qualified health center shall prepare and submit
to the Administrator an application at such time, in such manner,
and containing such information as the Administrator may reasonably
require.
`(3) ACTIVITIES- A federally qualified health center shall use amounts
received under a grant under paragraph (1) to--
`(A) provide training for health care providers on identifying and
educating women who are at risk for alcohol consumption during pregnancy;
`(B) provide training for health care providers on screening children
for Fetal Alcohol Spectrum Disorders;
`(C) educate health care providers and other relevant federally
qualified health center workers on the support services available
for those with Fetal Alcohol Spectrum Disorders and treatment services
available for women at risk for alcohol consumption during pregnancy;
and
`(D) implement a tracking system that can identify the rates of
Fetal Alcohol Spectrum Disorders by racial, ethnic, and economic
backgrounds.
`(4) SELECTION OF PARTICIPANTS- The Administrator shall determine
the number of federally qualified health centers that will participate
in the demonstration program under this subsection and shall select
participants, to the extent practicable, that are located in different
regions of the United States and that serve a racially and ethnically
diverse population.
`(5) AUTHORIZATION OF APPROPRIATIONS- There are authorized to be appropriated
to carry out this subsection, such sums as may be necessary for each
of fiscal years 2008 through 2012.
`(6) REPORT TO CONGRESS- Not later than 1 year after completion of
the demonstration program under this subsection, the Administrator
shall prepare and submit to Congress a report on the results of the
demonstration program, including--
`(A) changes in the number of women screened for and identified
as at risk for alcohol consumption during pregnancy;
`(B) changes in the number of individuals identified as having a
Fetal Alcohol Spectrum Disorder; and
`(C) changes in the number of alcohol-consuming pregnant women and
individuals with Fetal Alcohol Spectrum Disorders who were referred
to appropriate services.';
(4) in subsection (h)(1) (as so redesignated)--
(A) in subparagraph (C), by striking `and' after the semicolon;
(B) in subparagraph (D), by adding `and' after the semicolon; and
(C) by adding at the end the following:
`(E) national public service announcements to raise public awareness
of the risks associated with alcohol consumption during pregnancy
with the purpose of reducing the prevalence of Fetal Alcohol Spectrum
Disorders, that shall--
`(i) be developed, conducted, and evaluated prior to broadcast
by relevant Federal agencies with the advice of the Interagency
Coordinating Committee on Fetal Alcohol Syndrome taking into consideration
the expertise and experience of other relevant Federal agencies;
`(ii) be broadcast through appropriate media outlets, including
the Internet, television or radio, in a manner intended to reach
women at risk of alcohol consumption during pregnancy; and
`(iii) be measured prior to broadcast of the national public service
announcements to provide baseline data that will be used to evaluate
the effectiveness of the announcements.'; and
(5) in subsection (k) (as so redesignated)--
(A) in paragraph (1), by striking `National Task Force on Fetal
Alcohol Syndrome and Fetal Alcohol Effect' and inserting `National
Task Force on Fetal Alcohol Spectrum Disorders';
(i) in subparagraph (B), by striking `and' after the semicolon;
(ii) in subparagraph (C), by striking the period and inserting
a semicolon; and
(iii) by adding at the end the following:
`(D) explore the feasibility of whether Fetal Alcohol Syndrome and
other prenatal alcohol disorders, or a subset of these disorders,
should be included in the Diagnostic and Statistic Manual of Mental
Disorders; and
`(E) in collaboration with the Centers for Disease Control and Prevention,
the National Institute on Alcohol Abuse and Alcoholism, the National
Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect, researchers,
and experts in the field, explore the feasibility of developing
a standard clinical case definition for Alcohol-Related Neurodevelopmental
Disorders.'; and
(C) by striking `Fetal Alcohol Syndrome and Fetal Alcohol Effect'
each place that such appears and inserting `Fetal Alcohol Spectrum
Disorders'.
SEC. 4. COORDINATION AMONG FEDERAL ENTITIES.
Part O of title III of the Public Health Service Act (42 U.S.C. 280f
et seq.) is amended by adding at the end the following:
`SEC. 399K-1. COORDINATION AMONG FEDERAL ENTITIES.
`(a) Interagency Coordinating Committee on Fetal Alcohol Syndrome- The
Secretary, acting through the Director of the National Institute on
Alcohol Abuse and Alcoholism, shall provide for the continuation of
the Interagency Coordinating Committee on Fetal Alcohol Syndrome so
that such Committee may--
`(1) coordinate activities conducted by the Federal Government on
Fetal Alcohol Spectrum Disorders, including convening meetings, establishing
work groups, sharing information, and facilitating and promoting collaborative
projects among Federal agencies; and
`(2) develop, in consultation with the National Task Force on Fetal
Alcohol Spectrum Disorders, priority areas for years 2008 through
2012 to guide Federal programs and activities related to Fetal Alcohol
Spectrum Disorders.
`(b) Coordination Among Federal Entities-
`(1) IN GENERAL- The Comptroller General of the United States shall
evaluate and make recommendations regarding the appropriate roles
and responsibilities of Federal entities with respect to programs
and activities related to Fetal Alcohol Spectrum Disorders.
`(2) COVERED ENTITIES- The Federal entities under paragraph (1) shall
include entities within the National Institutes of Health, the Centers
for Disease Control and Prevention, the Substance Abuse and Mental
Health Services Administration, the Health Resources and Services
Administration, the Indian Health Service, the Agency for Healthcare
Research and Quality, the Interagency Coordinating Committee on Fetal
Alcohol Syndrome, the National Task Force on Fetal Alcohol Spectrum
Disorders, as well as the Office of Special Education and Rehabilitative
Services in the Department of Education and the Office of Juvenile
Justice and Delinquency Prevention in the Department of Justice.
`(3) EVALUATION- The evaluation conducted by the Comptroller General
under paragraph (1) shall include--
`(A) an assessment of the current roles and responsibilities of
Federal entities with programs and activities related to Fetal Alcohol
Spectrum Disorders; and
`(B) an assessment of whether there is duplication in programs and
activities, conflicting roles and responsibilities, or lack of coordination
among Federal entities.
`(4) RECOMMENDATION- The Comptroller General shall provide recommendations
on the appropriate roles and responsibilities of the Federal entities
described in paragraph (2) in order to maximize the effectiveness
of Federal programs and activities related to Fetal Alcohol Spectrum
Disorders.
`(5) COMPLETION- Not later than 1 year after the date of enactment
of the Advancing FASD Research, Prevention, and Services Act, the
Comptroller General shall complete the evaluation and submit to Congress
a report on the findings and recommendations made as a result of the
evaluation.'.
SEC. 5. SERVICES FOR INDIVIDUALS WITH FETAL ALCOHOL SYNDROME.
Section 519C(b) of the Public Health Service Act (42 U.S.C. 290bb-25c(b))
is amended--
(1) in paragraph (11), by striking `and' after the semicolon;
(2) by redesignating paragraph (12) as paragraph (15); and
(3) by inserting after paragraph (11), the following:
`(12) provide respite care for caretakers of individuals with Fetal
Alcohol Syndrome and other prenatal alcohol-related disorders;
`(13) recruit and train mentors for individuals with Fetal Alcohol
Syndrome and other prenatal alcohol-related disorders;
`(14) provide educational and supportive services to families of individuals
with Fetal Alcohol Spectrum Disorders; and'.
SEC. 6. PREVENTION, INTERVENTION, AND SERVICES IN THE EDUCATION SYSTEM.
(a) General Rule- The Secretary of Education shall be the lead Federal
official with responsibility over education-related issues with respect
to children with Fetal Alcohol Spectrum Disorders.
(b) Specific Responsibilities- The Secretary of Education shall direct
the Office of Special Education and Rehabilitative Services to--
(1) collect, collate, and disseminate (through the Department's Internet
website and through other means) to education groups (including the
National Association of School Boards, the National Education Association,
the American Federation of Teachers, the National Association of Elementary
School Principals, the National Association of Secondary School Principals,
and other appropriate education organizations), to teacher-to-teacher
workshops, to 21st Century Community Learning Center program grantees
and other after school program personnel, to Parent Teacher Associations
and Parent Information and Training Centers, and to family aid programs,
evidence-based practices that are effective in the education and support
of children with Fetal Alcohol Spectrum Disorders in both special
and traditional educational settings, such practices to incorporating
information concerning the identification, behavioral supports, teaching,
and learning associated with Fetal Alcohol Spectrum Disorders;
(2) ensure that, in administering the Individuals with Disabilities
Education Act, children with Fetal Alcohol Spectrum Disorders have
the right to access general curriculum under the least restrictive
environment;
(3) introduce curricula previously developed by the National Center
on Birth Defects and Developmental Disabilities and the Substance
Abuse and Mental Health Services Administration on how to most effectively
educate and support children with Fetal Alcohol Spectrum Disorders
in both special education and traditional education settings, and
investigate incorporating information about the identification, prevention,
and treatment of the Disorders into teachers' credentialing requirements;
(4) integrate any special techniques on how to educate and support
Fetal Alcohol Spectrum Disorders children into parent-teacher or parent-administrator
interactions, including after-school programs, special school services,
and family aid programs;
(5) collaborate with the Secretary of Health and Human Services to
ensure that Fetal Alcohol Spectrum Disorders prevention grants under
section 399H of the Public Health Service Act include education concerning
Fetal Alcohol Spectrum Disorders in the sexual and health education
curricula of schools; and
(6) organize a peer advisory network of adolescents in schools to
discourage the use of alcohol while pregnant or considering pregnancy.
SEC. 7. PREVENTION, INTERVENTION, AND SERVICES IN THE JUSTICE SYSTEM.
The Attorney General shall direct the Office of Juvenile Justice and
Delinquency Prevention to--
(1) implement screening procedures and conduct training on a nationwide
Fetal Alcohol Spectrum Disorders surveillance campaign for the Department
of Justice in collaboration with the efforts of the National Center
on Birth Defects and Developmental Disabilities under section 399H(b)
of the Public Health Service Act (as added by this Act);
(2) introduce training curricula on how to most effectively identify
and interact with individuals with Fetal Alcohol Spectrum Disorders
in both the juvenile and adult justice systems, and investigate incorporating
information about the identification, prevention, and treatment of
the disorders into justice professionals' credentialing requirements;
(3) promote the tracking of individuals entering the juvenile justice
system with at-risk backgrounds that indicates them as high probability
for having a Fetal Alcohol Spectrum Disorder, especially those individuals
whose mothers have a high record of drinking during pregnancy as reported
by the appropriate child protection agency;
(4) educate judges, attorneys, probation officers, child advocates,
law enforcement officers, prison wardens, alternative incarceration
administrators, and incarceration officials on how to treat and support
individuals suffering from Fetal Alcohol Spectrum Disorders within
the juvenile and adult justice systems, including--
(A) programs designed specifically for the identification, treatment,
and education of such children; and
(B) curricula development and credentialing of teachers, administrators,
and social workers who implement such programs;
(5) conduct a study on the inadequacies of how the current system
processes children with certain developmental delays and subsequently
implement alternative methods of incarceration and treatment that
are more effective for youth offenders identified to have a Fetal
Alcohol Spectrum Disorder; and
(6) collaborate with Fetal Alcohol Spectrum Disorder professionals
and implement transition programs for juveniles and adults with Fetal
Alcohol Spectrum Disorders who are released from incarceration.
SEC. 8. MISCELLANEOUS PROVISIONS.
(a) Authorization of Appropriations- Section 399J of the Public Health
Service Act (42 U.S.C. 280f-2) is amended by striking `the part' and
all that follows through the period and inserting `subsections (h) through
(k) of section 399H, $27,000,000 for each of fiscal years 2008 through
2012'.
(b) Repeal of Sunset- Section 399K of the Public Health Service Act
(42 U.S.C. 280f-3) is repealed.
END
